Women caregivers (mothers, aunts, sisters, grandmothers), who care for and protect children with chronic diseases, mostly live fram from Caracas, have limited resources and have left their jobs, studies and family, to move to Caracas seeking medical care for their ill children.
The J.M de los Ríos Hospital is a public health center of national reference located in Caracas, specializing in
the care of children with various pathologies, among which chronic diseases, such as renal, neurological, cardiac and respiratory
Being the only center in its style throughout Venezuela, it receives patients from all the states of the country. Their relatives, in their majority, do not count on the necessary economic resources to finance their stay in the capital city.
Coupled with this, due to the adverse economic, political and social context that the country is currently experiencing and which has worsened over time, these relatives must face great material and emotional demands that reduce very quiclky the scarce resources these people own.
This whole picture is aggravated if one considers that the traditional patients of the hospital, suffering from mostly chronic diseases and of a delicate prognosis, require the vigilance and permanent care of their relatives, who are usually their mothers or other women of the family environment. , as aunts and grandmothers.
These women/caregivers spend day and night in permanent guard to take care of their hospitalized children waiting for a quick improvement. During their watch, which may last for months or even years, the caregivers are exposed to hardships and mistreatment that they might not face if their children or relatives were healthy. In all this time, those who work have stopped doing so, some lose family stability, others are exposed to gender violence inside and outside the hospital, others get sick when unable to ensure their own health. Almost all fail to perform socio-productive tasks that could improve the precarious conditions in which they must subsist within a hospital dynamic that is far from what would be their lives if they did not have to take care of their child or family.
Given this scenario, this proposal seeks to develop and provide comprehensive assistance solutions in the area of physical and mental health, emotional orientation, training-action in entrepreneurship, prevention of violence against women, which empower them to face as full subjects of law the hospital context of daily care of their relatives. Through an accompaniment that facilitates the temporary disconnection with the constant care of patients, thanks to the intervention of groups of volunteers who can relieve them while they are attended by a doctor, they are trained in an area of their interest, receive legal assistance or legal advice, or they are formed as defenders of their rights and those of their children, it is hoped that these women can overcome the condition of total vulnerability that reduces them to be permanently in a hospital, caring for a child, with little support that could give other relatives, their partners (to have them) or professional teams within the hospital.
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